Scott A. Mackler Memorial 5K Run/Walk: One and A Half Legs

One and A Half Legs

Thank you for supporting my fundraiser for the Scott A. Mackler Memorial 5K Run/Walk!

Amyotrophic lateral sclerosis (ALS) is a neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow, and breathe. ALS can strike anyone, and presently there is no known cause or cure. With a ridiculous life expectancy of 2-5 years after diagnosis we're overjoyed that Andy is, as always, well above average.

Andy was diagnosed 10 years ago in November of 2014 and began using assistive technology to communicate in 2018. As a tech nerd Andy has been able to adopt or modify new technology as he needs to. Not all folks with ALS are as lucky and that is why the Mackler program is so important to our local ALS community.

The Scott A. Mackler, MD, Ph.D., Assistive Technology Program provides people with ALS access to assistive technology devices and services that are often not covered by insurance policies. Additionally, the Program ensures that assistive technology services are an integral part of ALS clinics and certified treatment centers.

Through the program, people with ALS can borrow devices such as

Remote door chimes to call for help
Environmental control units that offer hands-free access to televisions, CD players, cable boxes, etc.
Rocket E-Books™ - an electronic device that allows you to read novels and published works
Scanning telephones to promote independent phone use
Dedicated communication devices that convey messages
Computers with voice output and the ability to access the Internet

Obviously I'm not walking or running the Mackler. I'll be with Andy at the start and at the finish line to cheer for you. If you can't make it that day, please consider sponsoring us. With your help, we will be able to make a difference in the lives of people affected by this disease.