In 2008, four women came together to establish the Rehoboth ALS Walk in honor of their loved ones. It has grown leaps and bounds since its first year. There have been many memorable Walk moments. In 2018, torrential downpours did not dissuade the walk teams and they not only showed up, they continued their fundraising! 

Thanks to the dedication of the Rehoboth Beach community, this Walk has raised over $1.2 million in the last 15 years.



For Steve Lee, every year is memorable as he honors the memory of his mother, Carole Anne Lee, who lost her life to ALS in January 2010 – just one year after her diagnosis.

Steve’s Walk Team – CALART – using the name of his mom’s event business, represents her initials (CAL) and the “ART” reflects his mother’s artistic talents. The team has six members, but with Steve at the helm it is mighty. Plus, Steve’s dad matches whatever money he raises for his Walk team. Steve’s contributions also include engaging sponsors such as the Green Turtle Restaurant and IG Burton Car Dealerships. He is the Walks premier raffle and 50/50 seller. Despite his very busy work schedule, he gives so much of himself to this event.

Steve’s mother’s battle with ALS was the impetus for his dedication to the ALS mission. He credits ALS United Mid-Atlantic with helping his mom and his family navigate the daily obstacles that often arise when someone is living with ALS. This included securing a wheelchair, using assistive technology, and the involvement of ALS United Mid-Atlantic's caring staff who came to their home. ALS United's Delaware support group formed a bond and it’s where Steve met Joyce and Mary Ann Wolter, the Walk Chairs.

“I recall ALS United Mid-Atlantic being there for us and helping dad receive respite, coordinating mom’s care, and how wonderful the entire staff was to our family. My contributions are the least I can do to help further ALS education, awareness, and research. We are the survivors of this disease…the family members and loved ones of people who are taken by ALS. Volunteering is how we can heal. I want to do all I can to see treatments moving forward and hope that with my help and that of other volunteers we can contribute to finding a cure to change the course of ALS.”


Steve and Carole Lee

Steve with his mother, Carole Anne, in 2010.