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WHY IRENE WALKS


"I am Irene Mitossis, the middle child and daughter of Dimitra Mitossis, and I started Team Nektarios in honor of my mother. 2023 is the first time my family and I are participating in the ALS Walk. Two years ago, my mom went to see our family’s primary doctor for what seemed to be muscle aches and a slight limp. At the time, it was unalarming and didn’t raise any red flags. Then, at 53, in April of 2021, my mom was diagnosed with Familial ALS, which is incredibly rare. This diagnosis utterly shocked my family and left us with so many questions. My great-grandmother on my mother’s side was diagnosed with ALS in the 80s. I, unfortunately, never had the chance to meet her. At first, I was overwhelmed with fear of the unknown. However, with all of the advancements and treatments available today, we are hopeful and eager to see the day that ALS becomes a livable disease. The treatments, brilliant doctors, and supporters who donate give our family the belief that my mom will DEFEAT ALS.
 
Irene_withfamily

In my heart, I know my mom is aware of how much my family and I love her, but I wanted to give her a visual representation of our support. So, I wondered what I could do to show my mom the same unconditional love and support she has given me all my life. With one quick google search, I found the Seaside ALS Walk. Without second-guessing, I picked up my cell to call my siblings, cousins, aunts, and uncles and registered my whole family. Everyone was on board. Then, it was time to let my parents know. Our family is private and tight knit. For a year, the immediate family and her first cousins were the only ones who knew of my mom’s diagnosis. This walk has given my mother the courage and voice to share her story outside the realm of our family. I’m in awe of my mother’s strength, faith, and vulnerability, for this is not easy information to share.

My mom is rare, before and after her ALS diagnosis.

My mother is the most gentle, selfless, and loving mother there is. There isn’t a day that I don’t feel her love. She supported my siblings and me throughout our years in all our endeavors. I will never forget that she sat on the bleachers for every one of our basketball and softball games, dance competitions, and wrestling matches. She was my personal tutor when schoolwork got too hard and the most creative person to look to when I needed help with school projects. We spent endless hours on the couch reviewing my Greek School lessons to ensure my pronunciation was on point. From a young girl, I always believed there was nothing my mom couldn’t do, and this belief has not wavered.

As my siblings and I got older, my mom decided to share her endless love with others and started to work at daycare. From the stories she told, I could tell the littles ones shared similar trust and love with her as well. She brought home projects to make, and I was always willing to help her create welcoming classroom art. Somewhere along the way, I followed in my mom’s footsteps and started working in a daycare. I brought home projects and created decorations for my classroom, just like my mom. Every time I do so, I can see the memories of working with children flood in. In addition, when the pandemic hit, our family’s diner needed extra help, and my mom came to the aid for a year until her diagnosis. She may have stopped working, but she never stopped being the most caring mom, aunt, and godmother.

Mom, I made this team to show you all the people who support you on this journey. To give you a voice when you were fearful. Most importantly, to let you know that all the years you stood by Regina, Yanni and my side and supported us never went unnoticed. It’s our turn to return that support to you. Our family, friends, church members, and neighbors have been gracious in their donations, all in support of the cause to Defeat ALS and to support you defeating ALS… I love you always and am blessed to call you my mom."
 

IN 2025, WE WALKED IN PHILADELPHIA FOR...


 

Alice Crayton
Ameenah Porter
Angela Califano
Anna Lutje
Barbara Levonchuck
Bill Fox
Billy Lake
Burt Holland
Chalie Smyth
Cheryl Connolly
Christine Frascella
Christine Kimber
Christine Roski
Chuck Morris
Cindy Italiano
Cindy Kline
Clare Maher
Connie Brocavich
Curtis "CuJo" Johnson
Dan Diaz
Daniel Hare
Daryl Polansky
David and Peggy Birkmire
David McCaffrey Sr.
Debbie McAllister
Dee Wallace
Delia Godlewski
Dennis Casey
Dennis McGlone
Dorothy Willig
Dr. Richard Sweet
Eddie Leigh
Edward Williamson
Eleanor Chestnut
Elizabeth O'Neill
Elizabeth Parker
Emily Hairston-Coleman

Fran Fanucci
Frank McAnaney
Gary Miller
Glenna Bishop
Gregory D. Patrone
Gregory Wolfe
Gregory Wolfe
Gretta Jones
Helene Green
In honor of Steve O
Irene McKeaney
Jacquelyn Fulton
James P. Driscoll, Jr
James R. Harris, M.D.
Jan Kane
Jeff Brown
Jeff Destefano
Jen DeBellis.
Jessica Ricketts
Jim Brunner
Jim Foo
John Kuneck
John Leuzzi
Jonathan Slott
Joseph H. Gaydosh
Joseph W. Walton
Joy Carducci
Joyce Lloyd
Joyce Rawlings
Karen Delaney Shideleff
Karen Meenan
Kathleen Hunt
Ken Pattinson
Kevin Glenn
Lana Felton Ghee
Linda Crosby
Linda Penna

Lorraine Delaney
Luis A. Colon
Lynne Parker-Creighton
Maria Pia Salvatori
Mario Lanni
Mark Kelly
Mary Ellen Quinn
Michael Bartone
Mike Brown
Mike Burg
Mike Powell
Nancy Tremblay
Pat Mayer
Patricia A. Thompson
Patricia Aleksinas
Patrick J Malloy
Paul Gilstrop
Peter Kiernan
Peter Lilge
Randy Myers
Richard L. Binette
Rita Kain
Robert McMichael
Robert Tito Cruz
Roger Kirk
Ron Carey
Rosalind W. Wright
Roy T Wells
Shelbie Oppenheimer
Stacy Lewin-Farber
Stephen Spangler Sr.
Terry Bean
Thomas J Donovan
Tom and Joe Boylan
Tom Collins III
William J Weber Sr
William T. Lambe

  

 

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