Thank you for supporting my ALS United Walk fundraiser! This year's walk will be on Saturday September 26 at Cedar Crest College with registration starting at 10:00.  The ALS United Walk raises funds for local patient care programs and to spread awareness of the urgency to find treatments and a cure. My wife Colleen fell to the disease in November of 2023, less than 2 years after diagnosis.  She wanted us all to continue the fight for a cure and support those living with ALS. Her personal contribution to the effort included participation in a trial drug uncomfortably delivered by weekly infusions for a little over a year before the program was cancelled. She smiled and joked her way through the sessions! 

 

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.

 

That's why I'm walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: "You have ALS" again. 

 

The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. 

 

But we can't stop now. The key to a cure begins with you. 

 

Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.